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Category: Parkinson’s Disease

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Neuro Normal…

Neuro Normal…

On a crisp November morning, an esteemed neurologist confirms what I already know. “It’s Parkinson’s Disease.” “Could it be anything else?” “No. You have PD. But I have patients who are in their eighties and nineties – and I know that you’ll be one of those too.” Learning that one has a neurodegenerative disease is not the greatest start to a Thursday. But there is still a day to be had – so I have it. I return phone calls on the drive home. And then tell my husband who is waiting for me. It is his worst day. Within hours he has us living in the wreckage of our future. We will sell our home and move into a… READ MORE

Crazy?!

Crazy?!

I am losing my mind. Am I’m losing it to my Parkinson’s Disease?  To age? To maladies yet to be diagnosed? I stare into space, trying desperately to remember what was right there, right there, on the tip of my tongue just moments ago. Then it hits me: I have children. It’s not the Parkinson’s Disease.  Nor age, nor my blessedly over-committed life. No, it’s those plotting little hellions, the Teen and Tween, who separately and together are intent on exacting my mother’s revenge. It’s my hell spawn who are driving me bonkers. Their ability to jump up and down on my very last nerve is masterful. If only they would channel this genius to their studies, they’d be the… READ MORE

Happy/Scared

Happy/Scared

I am happy because my home is solid and my kids… well, they’re here and kinda solid too. I am happy to have learned from my many mistakes and hope that this hard-earned knowledge will spare others pain. I am happy that I have Parkinson’s Disease instead of Multiple Sclerosis which I admit seems like a backhanded version of happy. But of late, I’m more fearful than happy. I read the news and fear that our lesser selves will prevail. That the world will divide again and again into ‘us’ and ‘them’ and repeat the genocidal madness that such thinking devolves into. I fear that I will never figure out how to follow my daughter on Snap Chat and that… READ MORE

Flu Fret

Flu Fret

“If you’ve got your health, you’ve got everything.” Well, then, I am lacking. I am afflicted. But so are many. My conditions are my constant companions. They’ll shuffle along this mortal coil with me for as long as I shuffle along upon it.  But there is a gift in my conditional state: my chronic ailments fortify me against the indignities of aging. When I was a child–back in the dinosaur age–there was a limited artillery in the asthma fighting arsenal. Compromised since my first wheezy breath, I was a Marax kid. (Marax shouldn’t ring a bell with many – it’s no longer manufactured in the USA because Ephedra, since banned, was an integral part of the formula.) I was a… READ MORE

Parkie Steps

Parkie Steps

There is no challenge that duct tape can’t overcome in the right hands. My husband has such hands. There is a pesky, Parkie peculiarity pertaining to stairs. Specifically–walking down them. When I look down, I see the step as if I’m wearing reading glasses and looking at a distant object. The challenge is heightened when the stairway is light and monochrome.  Often — especially when I’m tired – my perspective is uneven and wonky. Steps are both closer and farther than they appear. On the Parkie perk side, I’m a great judge of whether or not the rise and run of a stairway complies with the building code.  It’s odd, like much of this idiosyncratic disease. I descend slowly, cautiously,… READ MORE

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